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Re: Access to T DM-1
Phil,
That is is fantastic that your wife is getting such a great response from T-DM1 so quickly. I've heard nothing but very encouraging things about it. In fact when I went out to see Dr. Slamon he was excited about T-DM1. If he liked it...I knew it was going to be a really good drug for us to use
We have one Her2 sister on this board named Chrisy. She enrolled in a trial with T-DM1 almost 3 yrs ago and it has kept her NED this entire time. She was stage IV with liver mets. I can't wait till all of us that need it can access it. Last I heard T-DM1 might get approved for use this coming Fall. (I wished it was sooner then that.)
I'm thrilled to hear your wife is doing so well with very few SE's...that's great! Sure sounds like your wife is a really good responder to T-DM1. Wishing your wife the very best! Thanks for sharing the news with us.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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