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michka · 05-08-2013, 01:07 PM

I am still sad and shocked by the lost of some of our beautiful HER2 sisters so I was hesitating to post.
But then I thought I had to share hope with the sisters who are in trouble!
Like our Dear Chrisy who gave me hope and strength to fight for TDM1.
I started TDM1 a year ago and now I am NED. I had more than a dozen of tumors in my lungs, liver, thorax abdomen.
TDM1 has not been easy for me but who cares? I only hope it will work forever and I know how lucky I am it is working for me. They lowered the dosage the last round for the second time so I could feel better. I am a little afraid because nobody knows what the minimal dosage is but it is true that my pain in the chest is gone.
I remember trying to visualize during my first TDM1 infusion that it was going to blast every stupid cancer cell. And it did.
I hope it will keep me NED, I hope it will bring other sisters to NED, I hope it will be available fast all over the world and I hope it will be successful in the neoadjuvant trials.
Love to all. Michka

05-08-2013, 01:07 PM	#1
michka Senior Member Join Date: Feb 2007 Location: Paris, France Posts: 858	One year of TDM1. NED! I am still sad and shocked by the lost of some of our beautiful HER2 sisters so I was hesitating to post. But then I thought I had to share hope with the sisters who are in trouble! Like our Dear Chrisy who gave me hope and strength to fight for TDM1. I started TDM1 a year ago and now I am NED. I had more than a dozen of tumors in my lungs, liver, thorax abdomen. TDM1 has not been easy for me but who cares? I only hope it will work forever and I know how lucky I am it is working for me. They lowered the dosage the last round for the second time so I could feel better. I am a little afraid because nobody knows what the minimal dosage is but it is true that my pain in the chest is gone. I remember trying to visualize during my first TDM1 infusion that it was going to blast every stupid cancer cell. And it did. I hope it will keep me NED, I hope it will bring other sisters to NED, I hope it will be available fast all over the world and I hope it will be successful in the neoadjuvant trials. Love to all. Michka __________________ 08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20% FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex 12.2010 Mets to liver,Herceptin+Tykerb 03.2011 Liver resection ER+70% PR- 04.2011 Herceptin+Navelbine+750mg Tykerb 06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum 11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin 02.2012 Mets to lungs, nodes, liver 04.2012 TDM1, Ned in 07.2012 04.2015 Stop TDM1/Kadcyla, still Ned, liver problems 04.2016 Liver mets. Back on Kadcyla 08.2016 Kadcyla stopped working. mets to liver lungs bones 09.2016 Biopsy to liver. no more HER2, still ER+ 09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife 01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere 02.2017 30 micro mets to brain breathing getting worse and worse 04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven 06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms