HER2 Support Group Forums - View Single Post - Metastatic Breast Cancer to 5+ Yrs. NED--Question

mamacze · 03-04-2014, 06:28 AM

Hi Karen - I am chirping from CT again…. I will be Stage IV and NED for 10 years in May of this year. I have been on Herceptin from the “get-go” and immediately following my adjuvant treatment, became NED. After 8 years on Herceptin, I stopped it …. just to see….holding my breath and hoping I could say “I used to have breast cancer”. Sadly, the tumors quickly reappeared within a couple of months - so I am back on Herceptin and holding steady. I think StephN has achieved the Nirvana of which you speak - but she is the only one I know at this point. Still and all, I can’t help but think we are riding the crest of a wave of phenomenal research and if we can just hang in there, we may be the beneficiaries of ground breaking results. Only time will tell.
How are you Angel?? Your signature is giving me a smile - Happy New Year back to you. Did your CEA stabilize? What did your genomic sequencing show?
XO

03-04-2014, 06:28 AM	#9
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Re: Metastatic Breast Cancer to 5+ Yrs. NED--Question Hi Karen - I am chirping from CT again…. I will be Stage IV and NED for 10 years in May of this year. I have been on Herceptin from the “get-go” and immediately following my adjuvant treatment, became NED. After 8 years on Herceptin, I stopped it …. just to see….holding my breath and hoping I could say “I used to have breast cancer”. Sadly, the tumors quickly reappeared within a couple of months - so I am back on Herceptin and holding steady. I think StephN has achieved the Nirvana of which you speak - but she is the only one I know at this point. Still and all, I can’t help but think we are riding the crest of a wave of phenomenal research and if we can just hang in there, we may be the beneficiaries of ground breaking results. Only time will tell. How are you Angel?? Your signature is giving me a smile - Happy New Year back to you. Did your CEA stabilize? What did your genomic sequencing show? XO __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!