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Old 08-19-2011, 06:23 AM   #1
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
scan and doctor update

I saw the oncologist Thursday. Good news - echo is normal - it always is. Brain MRI looked better than in May - still multiple spots though. Not good: MRI lumbar sacra spine - lots of mets - may be contributing to leg pain.

I have radiation starting Monday on my lumbar and sacral spine. That touches on the lower abdomen and can cause nausea and other gastro problems - diarrhea , constipation. I still have 1 week to go with the femur so the 1st week will be on both areas. Wish they had decided this in the beginning so I could have been done with it all in a week.

PET/CT shows mild progression in all areas - "diffuse met disease in all bony area." CA2729 is up to 5500 from 4700 3 weeks ago.

I'm off halven and will start abaxane, herceptin, zomets on Sept.1

I asked about tdm1 and he said I'd have a rough time getting in with my current brain MRI. I might still call and ask.

I broke down and started to drink boost & ensure. Do not like the taste but am tolerating it. At least I get a few more calories that way.

He's usually a jovial guy; he was very somber. As he was looking at the list of drugs he said - "you are running out of options." Hard to here.

Meanwhile the pain in my left thigh is no better. That radiation isn't doing a thing yet. I was getting by on ibuprofin but now sometimes take oxycodone but only when I know I can sleep.

That's my update still trying to process it all - it keeps getting worse. Love you all pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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