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Old 05-17-2016, 06:09 AM   #1
PMK
Member
 
Join Date: Dec 2015
Posts: 11
tamoxifen side effects?

Hi
I decided after a month of uncertainty to add tamoxifen to my herceptin/perjeta. For those of you who are taking tamoxifen, I'm looking for input for potential side effects so I am prepared. Thank you in advance.
Patrice
Hello,
I have been on Herceptin/ Perjeta (only) for 3 months. I was wondering if anyone else has only been on these antibodies dx with stage IV, and what the results were. Or, how long did it last. I am not happy with waiting for things to progress before adding something. I feel like I should be doing more.
Dx Stage IV Her +, April 2015 with collapsed lung-mets to lung, liver, questionable bone, and some nodes
Chest tube placed to relieve 5 liters of fluid in right lung
1 round of cyclophosphamide/doxorubicin until tumor biopsy confirmed Her2+
May 2015-began taxol/herceptin/perjeta
chest tube removed
3 lung taps to remove continued fluid problem and shortness of breath
September 2015- plural tube placed in lung
Continued with taxol/herceptin/perjeta
Scans slowly improved
December 2015-discontinue Taxol due to increased neuropathy in feet and hands
February 2016-plorax drain removed, fluid issue resolved. Bottom of right lung remains collapsed, but feels ok.
Continuing on herceptin/perjeta
(lost 5 year old daughter to neuroblastoma in 2011 after a 2.5 year battle)
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