View Single Post
Old 09-06-2012, 08:20 AM   #16
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Evidence Mounts on Heart Failure After Trastuzumab in Breast Cancer Survivors

I asked Hopeful to post on this forum to be sure that everyone watches their heart because it is not always our first priority.
But I don't mean we must stop Herceptin or TDM1 or other drugs because of that. For example we now know that ACs are toxic and sometimes we can avoid them. More and more but not always.
I would love to have tests telling me if a chemo will work for me without having the medical system pay for nothing and maybe having toxic side effects. But we don't have those tests yet.
So Phil and Greg you are both right. Your arguments are good. It is just an open discussion. You are two major contributors to our Group. We need you.
I am so grateful to both of you for sharing all your knowledge with us and fighting on our side. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote