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Hi, this is Lola. I have been on Herceptin alone now for a year and no recurrence WooHoo!! I initially got BC Aug. 2000, Recurrence to lymph nodes in neck and chest Dec. 2002. Lots of chemo and rads, mastechtomy.
Rarely does it happen, but because of A/C I now have developed MDS, myleodysplastic syndrome, a bone marrow failure disease, therapy-induced. It progresses to acute myleoid leukemia. It is a terrible thing when therapy that kept you alive with one disease (BC) causes another disease.
Will be looking into a bone marrow transplant with a MDS specialist in Seattle. BMT's often have the affect of kicking up latent cancer cells so I could have a relapse of BC after fighting off MDS. Someone has to come up with a better way to cure cancer!!!
I have a new MDS forum now that divides my time , but you are still on my heart.
This group has literally been my lifeline. I might get to meet Steph in Seattle this week end. Would love to meet you all!
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