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v-ness · 02-17-2016, 12:09 PM

thank you for your responses! i appreciate it. i left a message for my onco on friday but i still haven't heard back, but i still quit taking it on friday. i'm just waiting to hear if i can now quit coumadin, or when i can quit it. she felt the blood clot in my leg after the flight and trains from italy were both flight and tamoxifen related. i cannot take AI's, i had bad reactions to all of them. i just realized that my hot flashes have already decreased dramatically even when it is no longer -10 degrees out, so i am THRILLED. i was originally having more than 40 a day when i first started this rollercoaster. haven't dropped an ounce, but maybe i will.... i work out hard several days a week. thanks again. v

02-17-2016, 12:09 PM	#6
v-ness Senior Member Join Date: Nov 2009 Location: western ma Posts: 280	Re: going off tamoxifen thank you for your responses! i appreciate it. i left a message for my onco on friday but i still haven't heard back, but i still quit taking it on friday. i'm just waiting to hear if i can now quit coumadin, or when i can quit it. she felt the blood clot in my leg after the flight and trains from italy were both flight and tamoxifen related. i cannot take AI's, i had bad reactions to all of them. i just realized that my hot flashes have already decreased dramatically even when it is no longer -10 degrees out, so i am THRILLED. i was originally having more than 40 a day when i first started this rollercoaster. haven't dropped an ounce, but maybe i will.... i work out hard several days a week. thanks again. v __________________ 8/09 - IDC 1.8 cm triple positive, lumpectomy left breast 10/09 began chemo (taxotere & carboplatin) and weekly herceptin. 1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010. 2/10 began 7 wks of radiation 6/10 mom dies of primary peritoneal ovarian cancer 8/10 got my last remaining ovary out 10/10 mammogram all clear 3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US needle biopsy proved the largest to be old inflamed cyst -phew! 7/10 switched to Arimidex 8/9 switched to Femara - allergic to arimidex Femara made me lose hair quickly so switched to Aromasin Aromasin made my hair fall out too and the bone pain was too much. back on Tamoxifen 1/2013. blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer. cancer's screwing with another man i love 2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!