HER2 Support Group Forums - View Single Post - Sisters with Mets...should I stop Herceptin?

Becky · 01-23-2011, 09:19 AM

Dear Kim

AndiBB and StephN (as well as our founder, Christine) have all stopped Herceptin. Although Jackie Handley did stop - she was not on Herceptin for years - she was from Australia and even though NED, she was only 18 months out when stopped, not years and years.

It is an anxious decision to make and I would privately message Andi and Steph since they have walked this path. I am so happy you continue to do so well and havd go make this decision.

Miss you!

01-23-2011, 09:19 AM	#6
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Sisters with Mets...should I stop Herceptin? Dear Kim AndiBB and StephN (as well as our founder, Christine) have all stopped Herceptin. Although Jackie Handley did stop - she was not on Herceptin for years - she was from Australia and even though NED, she was only 18 months out when stopped, not years and years. It is an anxious decision to make and I would privately message Andi and Steph since they have walked this path. I am so happy you continue to do so well and havd go make this decision. Miss you! __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"