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Old 01-22-2011, 06:42 PM   #1
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Question Sisters with Mets...should I stop Herceptin?

My fervent wish is that you ALL may have this conversation with your oncologist; but once again my oncologist has broached the idea of stopping all treatment.
I had mets in all 4 lobes of my lungs and liver in 2004; and have been NED since my first round of adjuvent therapy.
My oncologist is asking me to consider stopping my Herceptin.
I have been on it for 7 years.
I have body scans scheduled in Feb.
What is your experience? Please share and give me your thoughts. I value your opinions and would not consider continuing this walk without hearing from you.

Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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