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Old 03-31-2022, 02:59 PM   #63
Senior Member
Becky's Avatar
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,175
Re: How many years NED? Give others hope

I am at 17.5 years. My school aged girls are grown and one is married. I am a grandma to a boy, Asher. I never thought I'd see this day. All I wanted was to live long enough for my girls to not be "messed up" from not having a mother. This site was my lifeline and helped me advocate for Herceptin of which I was not really eligible. I got it and maybe that's why I'm here. So grateful. Thank you Her2 friends
Kind regards


Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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