View Single Post
Old 05-02-2011, 02:30 PM   #32
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Once again - news is NED

Thanks everyone for the hugs and good wishes. Very much appreciated.

Chrisy - my Emile is a great dancer, so NED has to reach a high bar as far as dancing goes!

About my diet. I have always taken reasonable care to have a decent, balanced diet. But I was not ever going vegetarian and never needed weight loss diets.

We ate fresh and mostly non-processed foods. Once I became stage IV with a liver full of tumors, I made more drastic changes.

First, I cut down the sugar to almost nil. That means refined sugar. Also cut out caffeine from drinks, and went out of my way to find dairy products that were organic and non-rbST.

Second, I decided to try to cut out as much of the chemicals that go into our food supply as possible. Started shopping for organic foods and eating a lot more wild caught fish. It was harder in 2002 to find these foods, and they were more expensive. Much easier now to maintain such a diet. Now I look forward to the opening of the local farmer's markets, and shop them at least once or twice a week.

I keep my kitchen quite clean including our fridge and stove. Also try not to overbuy, planning with only 2 or 3 days at a time in mind. Have to do this in order to "eat fresh."

Good quality olive oil is used daily in my cooking, which I feel is important for us HER2 girls.

Hope this answers the questions.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote