|
Re: HELP!!!!!! Pertuzumab denied by insurance! iN PANIC MODE AND DON'T KNOW THAT TO
Thank you, friends, for the suggestions and prayers! I must have started to breathe sometime during the night because, well, I woke up. Thank God.
Turtle - great idea, wrong drug, but I like the way you think
KarenZ - dr Rugo was the onc who had the unpleasant conversation with the insurance co. I guess I'm the first patient not first line MBC she's tried to get this for, at least w/my insurance co. I know of one other person ( study buddy) she is planning this for, but she has the option of staying on study to wait things out. I don't so I guess I need tonight hard!
KDR - I emailed Sonali last night; she gave me some phone numbers to try at Gene. But I agree, the least they could do is give me some free samples! I will send you a pm
Mostly, I think that whatever I do, and I WILL do everything I can), Miracles, whether right decisions or new medicines come from only One source, so I'm boldly asking for bold prayers to cicle the globe, for me and for my Her2 family
Much love,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|