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Old 07-18-2011, 09:14 AM   #17
CourtneyL
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Join Date: Aug 2008
Location: San Francisco
Posts: 260
Re: CourtneyL needs our support

Thank you all so very much! Your messages of love and support really gave me a lift. I'm currently on a lovely vacation with my family in New England. Going for my second Ixempra on Thursday. So far, other than the hair loss, it hasnt been too bad. I see shrinkage already in the new tumors just under the skin. I really think it is working and will report back once I have confirmation of shrinking tumor markers.

If anyone would like the link to my Caringbridge page, Is be happy to send it to you privately. Thank you for understanding! My love to you all!!!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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