HER2 Support Group Forums - View Single Post - Tamoxifen has become an issue

I feel terrible for you. No advice, but a second opinion is called for as to the benefit of tamoxifen for you. I had an awful time on tamox but nothing compared to what you've been going through. I'm kind of surprised that your doctor is still allowing you to use it. As you stated, the side effects can be life threatening.

Best
Janis

__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!

12-07-2015, 07:21 PM	#2
jaykay Senior Member Join Date: Oct 2012 Posts: 646	Re: Tamoxifen has become an issue I feel terrible for you. No advice, but a second opinion is called for as to the benefit of tamoxifen for you. I had an awful time on tamox but nothing compared to what you've been going through. I'm kind of surprised that your doctor is still allowing you to use it. As you stated, the side effects can be life threatening. Best Janis __________________ March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010) Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70% BRCA 1 and 2 negative October, 2012: Bi Mast with tissue expanders, port placement Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks. March 14, 2013: Finished chemo April 9, 2013: Begin radiation 28x May 22, 2013: Finished rads June 1st, 2013: Started Aromasin for 5 yrs. July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life October 16, 2013: Exchange surgery October 31, 2013: Finished Herceptin December 5, 2013: Port removed Glad this year is over!