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Re: Ugh Brain Mets!
Hello everyone!
It's been ages since I posted, but just an update. I had another SRS round in May of this year to bring it to a total of 4 treatment cycles for 6 mets. The radiation onc was wonderful and I didn't need to take the evil steriods which were the worst part of me in the previous treatments. I still am in North Dakota. Since my last treatment, I have had 2 clean MRIs! Below the neck is still NED. Is the beast gone? Who knows, but I do have days now where I don't think of cancer. That is a great blessing that I am grateful for.
Like all of you, this wasn't the life I was planning, but thanks to the research and development of the HER2 drugs, I'm still here.
Best to all of you and thank you for all the support, you made this journey easier and less lonely.
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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