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Re: Ugh Brain Mets!
Hi everyone - just an update - I finished my treatment two weeks ago, it was pretty straight forward. Now it's wait and see - MRI will be in 2 months. Tapering off the Dex is a bit rougher than I expected, I hated it so much I could not wait to get off. I've been fatigued and have had to back up a couple of times due to headaches, right now I on only 1 mg per day versus 12 at the Max so I'm getting there. Slow and steady seems to work. Definitely the Dex was the worst part of this.
Thanks for all the encouragement and sharing of your personal experiences, that really helps make this less. Love you all!
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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