Thread: Ugh Brain Mets!
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Old 01-13-2015, 03:05 PM   #8
embur102
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Join Date: Jun 2012
Posts: 81
Re: Ugh Brain Mets!

Hi Dizzy,

In June, 2014 I had a brain met that was discovered by seizure, also....no other symptoms, or metastasis at that time.
Did the dex and Keppra....holy cow, was I a Hot Mess!!

Hang in there, it does get better. The nurse suggested taking the dex at 6 am, 10am, 2pm ,and 6pm, and adding melatonin about 8 pm, to be able to sleep. It did help ( i wasn't decoupaging the fridge at 3 am and getting confrontational with the neighbors anymore!)

I had a successful Gamma knife treatment, then had rebound swelling 6 months after. Currently weaning down from another huge round of dex ( started in Oct., now down to two milligrams a day, will finish Jan 31), but it has taken care of the swelling.

Switched from Keppra (which made me severely depressed) to Vimpat.

Liver mets discovered about the same time as the swelling, so now in treatment for that (Taxotere/Herceptin/Perjeta).

Know that you WILL get through this!! There is lots of love and support and "success" stories from the women on this board.

Good luck with the gamma.....let us know how it goes.
Holding you in Love and Light, and sending healing energy ~~~~~~~~~~
__________________
Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015


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