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Ugh Brain Mets!
Hello Lovelies, I need some of your advice again.
Just when things were going well....I just found out I have 3 little mets in my brain. Ugh. I had a seizure last week and the MRI found em. Doc very optimistic and I'm getting the cyber knife next week.
I remain NED except in da head. Interesting, no indication from my tumor markers on this one, all was normal low. I didn't really have any symptoms until the seizure hit.
Right now I'm on the dex steriods and Keppra. The dex is driving me batty, I am not sleeping well and crabby! I've been cleaning a lot around the house though lol! I'm off work for a bit until I get this zapped.
A couple of questions: any advice on manage the dex? I take 4 mg twice a day. I have the flushing face - thank goodness it's winter. Anything that can help with sleep?
Also - what's the cyber knife like? I had my mask made last week, now I just want to get I to get it over with. How long on Dex after the cyber is done?
Thanks as always for your help, it's good to know others have been down this road. I am very optimistic and looking forward to getting this behind me.
I guess I deserve my ID name now cuz I'm Dizzy!
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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