HER2 Support Group Forums - View Single Post - Scans and update-

Jackie07 · 04-20-2013, 07:22 PM

KsGal,

No, you don't sound like someone who's having problems from demyelinazation. Please get a second opinion (ask for the MRI's and sent them to another reputable hospital for a consult - Not sure about the modern day procedure - they probably can be sent via comuter/Internet now. The 2nd opinion doctor probably just need your [oral?]consent [form?]...)

Films are hard to read/analyze. When I was nearing the end of my rehabilitation 40 days after the brain surgery (Central Neurocytoma - unrelated to BC) in summer, 1990, my surgeon checked the wounds/scar on my scalp and said: "Looks good. When it heals completely, we'll have the 2nd surgery ..." I chewed him out right away: "You just love to cut [into] people's head!"

10 days later, the new MRI turned out pretty good and my surgeon said: "Miracle! There's no trace of tumor!" My Oldest Brother was sure that the surgeon was lying because of my prior reaction. 11 years later (2001)I had Gamma-knife to control 3 residue tumors that had been growing in the center. A year ago I had had three MRIs within six months (ended up having to pay for one of them by myself) to chek two other tumors - especially the one that's near the Thalamus. Eventually the surgeon decided there's no urgent need to take the risk. So no radiosurgery for now!

Exercise will increase the release of endorphin (aka 'Happy Hormone') Try to tap your feet, stretch your arms if you can't walk too far. Singing is also a good way to improve mood as it exercise the head area and it requires stretching our mouth - similar to laughing/smiling.

Heed Andi's advice. Yes, we are 'professional' patients! My gynecologist, brain surgeon, radiation oncologist have all retired. My medical oncologist and breast surgeon have moved to other towns and will probably retire pretty soon. And I really like the new (and very young) oncologist's energy and confidence.

About short-term memory / cognitive problem - I've been living with them forever! There are ways to compensate ...

Hang in there! Tell your doctor (if they dare to bug you about it again) that 'we are 'all' terminal'! Nobody will live forever!

04-20-2013, 07:22 PM	#7
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Scans and update- KsGal, No, you don't sound like someone who's having problems from demyelinazation. Please get a second opinion (ask for the MRI's and sent them to another reputable hospital for a consult - Not sure about the modern day procedure - they probably can be sent via comuter/Internet now. The 2nd opinion doctor probably just need your [oral?]consent [form?]...) Films are hard to read/analyze. When I was nearing the end of my rehabilitation 40 days after the brain surgery (Central Neurocytoma - unrelated to BC) in summer, 1990, my surgeon checked the wounds/scar on my scalp and said: "Looks good. When it heals completely, we'll have the 2nd surgery ..." I chewed him out right away: "You just love to cut [into] people's head!" 10 days later, the new MRI turned out pretty good and my surgeon said: "Miracle! There's no trace of tumor!" My Oldest Brother was sure that the surgeon was lying because of my prior reaction. 11 years later (2001)I had Gamma-knife to control 3 residue tumors that had been growing in the center. A year ago I had had three MRIs within six months (ended up having to pay for one of them by myself) to chek two other tumors - especially the one that's near the Thalamus. Eventually the surgeon decided there's no urgent need to take the risk. So no radiosurgery for now! Exercise will increase the release of endorphin (aka 'Happy Hormone') Try to tap your feet, stretch your arms if you can't walk too far. Singing is also a good way to improve mood as it exercise the head area and it requires stretching our mouth - similar to laughing/smiling. Heed Andi's advice. Yes, we are 'professional' patients! My gynecologist, brain surgeon, radiation oncologist have all retired. My medical oncologist and breast surgeon have moved to other towns and will probably retire pretty soon. And I really like the new (and very young) oncologist's energy and confidence. About short-term memory / cognitive problem - I've been living with them forever! There are ways to compensate ... Hang in there! Tell your doctor (if they dare to bug you about it again) that 'we are 'all' terminal'! Nobody will live forever! __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 04-20-2013 at 07:25 PM..