HER2 Support Group Forums - View Single Post

Lori R · 08-16-2009, 02:18 PM

Carolyn,
I am so excited for you and wish both you and Barbara all the best.

Thank you for posting these questions as there are more "lurking" than you may realize.

I am headed in for my post cryosurgery / Abraxane Pet/CT. I have been feeling a burning sensation in my stomach and am 95% certain that the treatment isn't working.

So....I am very interested in this trial and would also have to travel. (I live in a suburb of Denver, CO)

Carolyn, you mentioned that you would only need to travel for the first 9 infusions. Is that recollection true? Can you receive your other treatments locally because there are TDM-1 trials in your area?

I am just trying to data gather to determine if a non-local trial would even be remotely possible. (I too factor in the impact to my highschool daughter when making treatment decisions)

Any insights would be appreciated....Lori

08-16-2009, 02:18 PM	#6
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: TDM1 Trial Participants: I Need Advise Carolyn, I am so excited for you and wish both you and Barbara all the best. Thank you for posting these questions as there are more "lurking" than you may realize. I am headed in for my post cryosurgery / Abraxane Pet/CT. I have been feeling a burning sensation in my stomach and am 95% certain that the treatment isn't working. So....I am very interested in this trial and would also have to travel. (I live in a suburb of Denver, CO) Carolyn, you mentioned that you would only need to travel for the first 9 infusions. Is that recollection true? Can you receive your other treatments locally because there are TDM-1 trials in your area? I am just trying to data gather to determine if a non-local trial would even be remotely possible. (I too factor in the impact to my highschool daughter when making treatment decisions) Any insights would be appreciated....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)