HER2 Support Group Forums - View Single Post - What can we do about the delay of TDM-1

Chelee · 09-17-2010, 03:22 PM

Elaine...I never thought of You Tube...another good avenue to use. I really don't want any of us here to drop the ball on this one. We need to strike asap. My onc had not even heard about this, but did say we should be pro-active and jump on it. I told her that's what were doing. We want to get our voices heard.

So as one big part of this are we going to draft a petition and have everyone sign it? I know we could get alot of signatures for this with no problems. So many good idea's here...so what should we all be doing now that will have the most affect?

There are so many of us that don't have that option of waiting till 2012 or worse yet 2013. Any other great idea's pls throw them out here. If Joe was here he would be all over this...so lets make him proud of us. That's a big part of why he and Christine built this board. So lets get it done...I know we can. This is too important not to give it our best shot.

Chelee

09-17-2010, 03:22 PM	#53
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: What can we do about the delay of TDM-1 Elaine...I never thought of You Tube...another good avenue to use. I really don't want any of us here to drop the ball on this one. We need to strike asap. My onc had not even heard about this, but did say we should be pro-active and jump on it. I told her that's what were doing. We want to get our voices heard. So as one big part of this are we going to draft a petition and have everyone sign it? I know we could get alot of signatures for this with no problems. So many good idea's here...so what should we all be doing now that will have the most affect? There are so many of us that don't have that option of waiting till 2012 or worse yet 2013. Any other great idea's pls throw them out here. If Joe was here he would be all over this...so lets make him proud of us. That's a big part of why he and Christine built this board. So lets get it done...I know we can. This is too important not to give it our best shot. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.