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dearjilly · 10-30-2013, 11:59 AM

Hiya,
I'm getting off the dex too. It's like we almost have to, so we can back to our old selves again. It really takes a toll, eh? Not easy to do.
I still have the neuropathy, I'm going to get my 3rd infusion soon, getting my son's 5th birthday organized, so tired from the avastin, and having my next in 2 weeks then my final tx on Dec. 4th and can't wait!! It's a tough drug, in my case.
I'm around Denise. If you ever want to vent about SE's, or Dex, or just want to chat. I'm here!
Until next time my friend. I'm thinking of you always. Sending some dex whining vibes your way!
xo Jill

10-30-2013, 11:59 AM	#4
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Re: NEDenise Downer Alert! Hiya, I'm getting off the dex too. It's like we almost have to, so we can back to our old selves again. It really takes a toll, eh? Not easy to do. I still have the neuropathy, I'm going to get my 3rd infusion soon, getting my son's 5th birthday organized, so tired from the avastin, and having my next in 2 weeks then my final tx on Dec. 4th and can't wait!! It's a tough drug, in my case. I'm around Denise. If you ever want to vent about SE's, or Dex, or just want to chat. I'm here! Until next time my friend. I'm thinking of you always. Sending some dex whining vibes your way! xo Jill __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]