HER2 Support Group Forums - View Single Post - Tykerb or not Tykerb, that is the question (tonight, anyhow)

Roz · 04-30-2007, 05:19 AM

Hi, I hope some one can help me in asap. It is Mon night at 9pm over here in Oz, and I go to the Onc who is one of two dispensers of Tykerb EAP in my local area in 12 hours. I will look on thw site before I leave in the morning.
Today i had a CT scan and my 2nd recurrence on 12th March 07 (> 3cm pleural effusion in Rt Upper Lobe) has been completely resolved. GREAT!! However, there is "a tiny low density in the inferior tip of the rt lobe of the liver (may be a cyst) but should be monitored". I hope to talk the Onc (whom i have never met) into putting me on the Tykerb EAP while it still exists and will be for free, rather than wait for it to be monitored and when i need Tykerb later, it will not be available on the EAP and will also not be on the PBS (Oz equivalent of FDA) until later on. Can anyone suggest anything else? Or am I panicking? xxxRoz

04-30-2007, 05:19 AM	#1
Roz Senior Member Join Date: Oct 2005 Location: Sydney Australia Posts: 105	Tykerb or not Tykerb, that is the question (tonight, anyhow) Hi, I hope some one can help me in asap. It is Mon night at 9pm over here in Oz, and I go to the Onc who is one of two dispensers of Tykerb EAP in my local area in 12 hours. I will look on thw site before I leave in the morning. Today i had a CT scan and my 2nd recurrence on 12th March 07 (> 3cm pleural effusion in Rt Upper Lobe) has been completely resolved. GREAT!! However, there is "a tiny low density in the inferior tip of the rt lobe of the liver (may be a cyst) but should be monitored". I hope to talk the Onc (whom i have never met) into putting me on the Tykerb EAP while it still exists and will be for free, rather than wait for it to be monitored and when i need Tykerb later, it will not be available on the EAP and will also not be on the PBS (Oz equivalent of FDA) until later on. Can anyone suggest anything else? Or am I panicking? xxxRoz