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Re: Brain Necrosis - No Add'l Treatment - Your thoughts
Yes, sounds like its time to bring in the experts. I think a consult with a neuro-oncologist is a great idea. I haven't dealt with necrosis issues myself so I am uninformed about the risks. Taking Boswellia might not be a bad idea. Its a natural anti-inflammatory. I took mega doses of it for several months last fall with no ill side effects. It didn't stop me from getting new brain mets but I never had to go on steroids either. Perhaps that had something to do with it. My heart goes out to you, Kris. You've been through so much lately, my dear. Stay strong and know that this is just a bump (albeit a big one) in the road. I see smooth sailing ahead for you...
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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