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Old 01-17-2012, 10:53 PM   #17
candlegranny
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Join Date: Feb 2010
Posts: 151
Re: Vaccine Clinical Trial, may not be able to go

my oncologist said it was a local metastesis since it was in 2 nodes in my clavical area on the same side as my diseased breast. he said it was on the other side it would have been mestatic because of the distance. not real sure about all that. the node involvement is what got me characterized as stage 3C, which is early stage, so i have been told. the spots on my lungs were 2 little spots 3 mm each maybe. they said they were too small to biopsy. my radiologist reviewed the scan and said that was where he radiated me so it was his opinion these were scars from radiation. my oncologist said he would agree with that. i go back in february for new PETscan. it will be 6 months after my last one. .i asked my oncologist to check me in 3 months he said no 6 months was fine. kind of bothered me to wait - we have good insurance and it would be covered but he said no. I am not sure if he said that cause i really didnt need a scan in 3 months or if he wanted me to have a good holiday before finding out if the spots on my lungs was growing. he did tell me it was 50 -50 chance of it coming back or not coming back. I am determined to be the 50 percent that beats this thing. I asked my oncologists about clinical trials after my treatments were all done. his reply was we gave you the standard treatment and it worked so what do you hope to prove with a trial. i find myself some days living a normal life....and loving it.. those are the days i forget about the cancer.
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Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
23 Aug 2012 NED
15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.


"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
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