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Re: Vaccine Clinical Trial, may not be able to go
Bonita,
I just inquired about the John Hopkins trial last week and spoke with Maureen. I have an email into my onc and I will see what she says about the trial. My onc is at a large teaching hospital in Chicago and she is current on all the latest Her2 developments. The time commitment is huge and I live in Chicago, so flights, hotels, and I still work full time and carry the health insurance on the family so I too would be juggling a lot. Also there are 4 sets of scans involved with the trial, which does not set well with me either, but like you Stage IIIc is a scary place to be and I want to throw everything I can at this so I don't go Stage IV. I expect to hear from her this week. I read your post and could not believe the similarities in the way you feel and the way I feel about this trial. I just got done being a patient, and now would be a patient for another year.
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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