Thread: its back
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Old 05-12-2021, 04:21 AM   #28
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: its back

Good morning, Donna! I have been gone from the board for a bit. Whirlwind of buying a new home and moving had me snowed under.

Overall, your scans appear promising. I think you are doing Taxol as your chemo? I hated that s*^t to be bluntly candid. It gave me such neuropathy in my feet that I dubbed them my "Herman Munster" feet, a reference to the old comedy The Munsters from the 60s. Remember it?

Anyway, I took L-glutamine which helped greatly and I have no permanent peripheral damage. The other alde to make Taxol more tolerable was to take 2 Aleve about 36 hours post infusion and take them twice daily for a few days. Aleve (and timing of the first dose at 36 hours--very important to "get out in front of the pain") was a Godsend. Oddly, I did not realize the importance of taking it BEFORE the nerve pain began. Then I would try to address the pain with Percocet which literally knocked me out for an hour and a half only to awaken with the pain untouched. It was just prior to my final infusion where my Onc instructed me to take the Aleve early and to continue it for a few days. That was my easiest infusion! Ah well....

https://pubmed.ncbi.nlm.nih.gov/11350883/

Did you discover whether your mets are indeed Her2 positive? Hormone positive? Curious.

Wishing you Godspeed. Praying for good results from treatment and freedom from pain.
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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