View Single Post
Old 12-18-2018, 04:31 AM   #65
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: ZW25 clinical trial - day one

Flori, my friend, I am glad to hear from you even though you sound frustrated and down. As Steph said, stable is remarkable and would bring a celebration were you not suffering such exhausting side effects. Feeling lousy begets overwhelming discouragement and even despair. A lack of a good quality of life makes living hard and depression seeps in. I have nothing to offer but my sympathy, Flori


I will pray today's infusion goes well. As a suggestion to get what you need out of the staff, do not hesitate to be vulnerable. Let them know you are afraid and that their face popping in, however brief, to check on you is comforting.
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote