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Re: Recommended: regular brain MRIs for all HER2+ patients
I didn't have symptoms before the seizure either. But It does scare me that it could have happened when I was driving or something. I was at work and my coworkers told me I started batting my arm, fell over and started seizing. There are EMTs where I work, one was in our meeting. They took me to the site doctor and ambulance to hospital. I don't remember anything until I was going down the road to the hospital. I had an MRI in Feb 2014 it was clean. So I was lucky on the timing I guess, but it could have been bad if the situation was different. Doc told me I will have them every 3 to 6 months now....
Lauriesh I like your approach, I should have done that! Doc told me vertigo and dizziness are also common warning signs - try those symptoms as well  .
Love u guys!
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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