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Old 04-27-2013, 08:31 PM   #47
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: NEDenise vs NEDecadron Smackdown!

Oh man. We are going through pretty much the same thing eh? WOW!
Well, you still managed to make me laugh with the gooey talk. You funny Denise!
I'm back up to 4mg dex. Plus I'm now taking this Boswellia Serrata herb thing. I'll take whatever I can get.
So now I guess we wait. Argh. Waiting sucks. However, this could still be necrosis. We have to think it. Yes, necrosis. I was doing the necrosis dance the other day. Like a rain dance.
Lets dance!
Jill xo
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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