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Lori R · 12-30-2011, 07:32 AM

While I don't have a lot of answers, I wanted to let you know that there are other Stage IV women on the site who are in a similar situation. My husband works for a small company with limited benefits, so I carry my insurance and my teenage daughter's.
I was so concerned about the uncertainty of medical coverage, I've decided to continue to work. Well 4 1/2 years later, I am still here and my insurance has paid for some non-standard treatments.

I wish I could offer more first hand knowledge of Medicare/Medicaid. Is establishing a meeting with someone a possibility?

Lori

12-30-2011, 07:32 AM	#4
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Has anyone gone on disability? While I don't have a lot of answers, I wanted to let you know that there are other Stage IV women on the site who are in a similar situation. My husband works for a small company with limited benefits, so I carry my insurance and my teenage daughter's. I was so concerned about the uncertainty of medical coverage, I've decided to continue to work. Well 4 1/2 years later, I am still here and my insurance has paid for some non-standard treatments. I wish I could offer more first hand knowledge of Medicare/Medicaid. Is establishing a meeting with someone a possibility? Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)