Bad scan confirms bad pet
Bonjour,
I just came back from my scan and it confirms all the bad points of the PET and indicates I have around 8 mets in the lungs+the rest. Did Navelbine protect me until I stopped in October? (in October the Pet was good and in January my liver MRI was ok).
I would like to get in a TDM1 trial. Thanks to Schoonder who provided the links I printed all the TDM1 trials in France to show my onc. It just says Paris or Marseille or Dijon so I do not know in what hospital but he should be able to know. I see him on Tuesday. It seems so far away.
But do you think I should fight for TDM1 now if I can get in a trial or try another chemo first? If you think I am wrong, please tell me. Love to all. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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