HER2 Support Group Forums - View Single Post - color of chemo you're taking- what color?

suzan w · 12-27-2016, 05:18 PM

oh, yes, Adriamycin...the red devil...I went through my chemo with that...it was pretty brutal. I was only able to take (ie:survive the chemo!!) 4 out of a recommended 6 treatments. I am now 11 years out and have developed "esophageal spasms" which hit me like a heart attack the first time. Whew...not a pleasant experience. Even though I know now what they are it still knocks me flat each time. I had terrible mouth sores due to chemo and I think my severe GERD is a result of that...??? There does not seem to be any "treatment" for esophageal spasms as they come out of the blue and don't seem to be food related. So...the Red Devil still rears its ugly head...however I have to watch what I say because at the time I was diagnosed, A/C chemo was the first step to Herceptin. And...it all saved my life!!!

12-27-2016, 05:18 PM	#8
suzan w Senior Member Join Date: Sep 2005 Location: Naples FL Posts: 1,744	Re: color of chemo you're taking- what color? oh, yes, Adriamycin...the red devil...I went through my chemo with that...it was pretty brutal. I was only able to take (ie:survive the chemo!!) 4 out of a recommended 6 treatments. I am now 11 years out and have developed "esophageal spasms" which hit me like a heart attack the first time. Whew...not a pleasant experience. Even though I know now what they are it still knocks me flat each time. I had terrible mouth sores due to chemo and I think my severe GERD is a result of that...??? There does not seem to be any "treatment" for esophageal spasms as they come out of the blue and don't seem to be food related. So...the Red Devil still rears its ugly head...however I have to watch what I say because at the time I was diagnosed, A/C chemo was the first step to Herceptin. And...it all saved my life!!! __________________ Suzan W. age 54 at diagnosis 5/05 suspicious mammogram-left breast 5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++ 6/14/05 bilateral mastectomy, node neg. all scans neg. Oncotype DX-high risk 8/05-10/05 4 rounds A/C 10/05 -10/06 1 yr. herceptin arimidex-5 years 2/14/08 started daily self administered injections..FORTEO for severe osteoporosis 7/28/09 BRCA 1 negative BRCA2 POSITIVE 8/17/09 prophylactic salpingo-oophorectomy 10/15/10 last FORTEOinjection RECLAST infusion(ostoeporosis) 6/14/10 5 year cancerversary! 8/2010-18%increase in bone density! no further treatments Oncologist says, "Go do the Happy Dance" I say,"What a long strange trip its been" 'One day at a time' 6-14-2015. 10 YEAR CANCERVERSARY! 7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use 6-14-16. 11 YEAR CANCERVERSARY!! 7-20-16 Prolia injection for severe osteoporosis 2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL. 6-14-17 12 YEAR CANCERVERSARY!! still suffering from CIU. 4 hospitilizations in the past year as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!! 6-14-18 13 YEAR CANCERVERSARY!! NED!!