HER2 Support Group Forums - View Single Post - I have finally been de-ported

Jackie07 · 08-27-2016, 05:13 PM

Congratulations!

I had also kept my port for several extra years after stopping treatment early due to weakened heart function based on MUGA result.

My situation is that my right arm had experienced lymphedema during treatment due to bug bites. And my left arm had been weakened after the hemi-paralysis following s 25-hour brain (tumor) surgery in 1990. Eventually I did get the port removed (a year or two after the prophylactic hysterectomy in 2010, I think.)
And my left arm has been strong enough to take the 'sting' lately. I found out that as long as the technician is an experienced staff (not a student in practicum), the blood has a better chance to flow on the first stick!

There's a lady in the regional clinic near FIL's house (where we've been staying for over 3 years) who is very good. I will request the blood draw from that clinic from now on.

08-27-2016, 05:13 PM	#8
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: I have finally been de-ported Congratulations! I had also kept my port for several extra years after stopping treatment early due to weakened heart function based on MUGA result. My situation is that my right arm had experienced lymphedema during treatment due to bug bites. And my left arm had been weakened after the hemi-paralysis following s 25-hour brain (tumor) surgery in 1990. Eventually I did get the port removed (a year or two after the prophylactic hysterectomy in 2010, I think.) And my left arm has been strong enough to take the 'sting' lately. I found out that as long as the technician is an experienced staff (not a student in practicum), the blood has a better chance to flow on the first stick! There's a lady in the regional clinic near FIL's house (where we've been staying for over 3 years) who is very good. I will request the blood draw from that clinic from now on. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 08-27-2016 at 11:15 PM..