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Senior Member
Join Date: Apr 2014
Posts: 206
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Re: GI mets?
I did see my GP but sh was running late. So when I said I had a form to fill as well as my concern about my gastrointestinal problem, she asked if we needed to do both now as she was running late, then said "Its not your fault, so tell me about it" She checked my tummy, which was quite tender then insisted there was no need to do a stool test unless I have been sick for 2 weeks. I got as far as saying my daughter's baby is due in 10days so I need to be healthy for then, and her reply was that I might have to miss the birth. So I never got to discuss my concern that it could be GI mets. I think she is also being directed by the current health rules not to use antibiotics any more than can possibly be helped now that antibiotics are becoming less and less effective. My digestive function is improving, and I am now taking probiotics and magnesium, and echinacea to boost my immune system's ability to deal with it if it is a virus, and grape seed capsules to also boost my immune system. I am going to assume it is an infection and do all I can to heal it, and if it continues or returns I will demand a test. Mind you, she did give me a form for me to get a stool test done in 2 weeks time, and I could absentmindedly get the test now and she may well be cross but at least I could get tested for infections
You people have reminded me what a hammering our digestive tract has during cancer treatment, and that I do need to regroup and replan and take on a course of action to continue healing. I do eat a lot of broccolini (which I love), but need to start cold press juicing daily and generally being much kinder to my body and wiser in what I put into it. Thanks!
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 1997-2004 many cysts, many MG & U/S: polycystic breasts.
Sept 2013 found lump,Cyst?? forgot lump.
Dec 2013 GP check, Referred for U/S, MG,FNA.
7 Jan 2014 Radiology: Radiologist turned screen away from me. When asked she said "Not a cyst, very suspicious.See your GP asa results avail."
Cancelled my psych clients for the week.
8 Jan 14 GP: 2.2cm IDC in 6cm DCIS field. FNA=malignant cells. Referred to Surgeon.
Cancelled my psych clients for the month.
13 Jan 14 Surgeon said L mastectomy not lumpectomy, offered neoadjunctive trial, agreed adjunctive chemo after surgery a good choice for me. Booked Body scan and bone scan for staging (both fine) Surgery for16 Jan,
16 Jan 14 Surgeon also agreed in preop meeting to also remove 6cm fatty cyst in job lot. Good job done.
19 Jan 14 discharged home with 1 drain.
22 Jan 14 drain partly pulled out overnight, serious seroma (600 ml reducing removed every 2 days for a month) Serious staph infection because nurse said wait 3 days for yr surgeon appointment.
26Jan 14 pathology: 2.2cm Grade 3(3,3,2)ER-, PgR-, HER2+2 so to be confirmed by Sish test. Node negative. No vascular or lymphatic involvement. No metastases in scans.
30 Jan 14 HER2+ high amplification, 13 gene copies per cell.
21st Feb 14 Began 3wkly TCH adjuvant treatment at The Mount Hospital Perth, with 3monthly MUGA heart tests +Oncologist or Surgeon full physical check-up.
Cancelled my psych clients for 6 months.
Feb 14 First MUGA test: 71%,
First C15.3 test: 20
7th March 14 began Neulasta self-applied injections 24hrs after each TCH treatment. Bonepain helped by spa, heatpacks and Claritin, reflux/indigestion helped by Somac.
July 14 completed docetaxol and carboplatin, ongoing herceptin to 12 months. Severe cognitive deficit/fatigue after 1pm daily.
Sept 14 Second MUGA test: 69%
Cancelled my psych clients for 2014
Dec 14 Third MUGA test: 70%
Second C15.3 test : 20
Cognitive fatigue delays return to work.
March 2015 Tachycardia pulse 168, night in hospital. Cardiologist says no heart disease, ALIVE ECG attachment for my mobile phone now regular monitoring.
July 2015 Worktrial, up to 8hrs per wk. Fatigue ongoing
Aug 2015 Heart good, no evidence of cancer, just Fatigue.
May 2019 Melanoma 1.5cm Stage 1 by right collarbone(was present as large freckle in 2014 and cut through by breast surgeon to remove fatty cyst at same time as mastectomy.) Melanoma removed leaving scar from shoulder to breastbone. In hospital twice for IV antibiotics. Told catagorically this could not be BC mets.
Dec 2019 Still NED, still fatigue in late afternoon, but have my brain back in the early mornings. So most days I watch the sunrise and hear the birds morning chorus in my bush backyard and am glad to be alive and to be me still.
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