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Laurel · 02-14-2016, 04:13 PM

I stopped Tamoxifen after I had my 5 years in the bag. My onc told me they were now recommending 10 years, but the benefit was so small and the side effects so miserable I just thought, "nuts to that! I'm done!" She was fine with my decision.

I feel loads better now. I sleep better and my joints, especially my knees, are like they were pre-cancer 8 years ago! My weight has not benefited unfortunately, but I am post-menopausal now and eat too much for my new metabolism.

02-14-2016, 04:13 PM	#2
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	Re: going off tamoxifen I stopped Tamoxifen after I had my 5 years in the bag. My onc told me they were now recommending 10 years, but the benefit was so small and the side effects so miserable I just thought, "nuts to that! I'm done!" She was fine with my decision. I feel loads better now. I sleep better and my joints, especially my knees, are like they were pre-cancer 8 years ago! My weight has not benefited unfortunately, but I am post-menopausal now and eat too much for my new metabolism. __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....