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Old 09-04-2013, 01:35 PM   #29
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Good News / "Bad" News

Hello my Friends,
Yes! The folliculitis is nearly healed - so no cellulitis... no assault on Dr. (?x?)... and sadly, no court appearance. I was looking forward to seeing some of you there!

Unfortunately, since last Friday, I've been suffering from a raging sinus infection.
Now, any who have had such a sinus infection know that it can cause headaches,
face pain, extreme fatigue, changes in vision, and dizziness.
Coincidentally, those are the same symptoms I experience when my brain edema flares up.

So, you can imagine how scared I was until Monday,
when the antibiotics for my sinuses started to alleviate those symptoms.
I hate cancer!

Still, a little concerning, but I'm hoping can be attributed to pressure from my sinuses...
and not pressure from increased brain edema,
or, God forbid new cancer...
I'm still pretty off balance when I stand or walk, and my right hand is very "shaky" and a little spastic.
I even bumped the dex back up to 2mg/day yesterday.
It was the first day of school for my boys, and there were scores of forms to be filled out and/or signed.
My shaky, spastic right hand was having none of it. Sooooo frustrating!!

If my hand shakes when I need to pick something up... big deal.
Typing is no treat...but that's what backspace is for.
If I have to be extra careful when I cut up veggies for dinner... no sweat.
But when you can't print legibly, or even sign your own name...
it's pretty scary... and makes me a little sad.

I don't know how people with Parkinson's cope!
I know I should be grateful... thank God it isn't worse!
But, sheesh!

On a more positive note...
For the first time since this whole cancer nightmare began... I have gone 7 entire months without a fall, injury, surgery, or ER trip!!
Woo Hoo! Yay me!
(That's actually why I bumped up the dex yesterday...
I was afraid I'd fall and end my streak!)
BTW, my previous record was 4 months.

Sad... but true!
I chuckle to myself sometimes when I remember that when I shattered the bones in my wrist last summer...
it wasn't even the worst problem on my list...
my brain tumors got diagnosed before I could even get my wrist fixed.
What would likely be someone else's worst injury/surgery in their life...
was barely a bump in my little stroll through hell!
And frankly, the pain in my back and leg last Christmas makes every other pain I've ever had seem like a stubbed toe, by comparison!

I really do believe that God has a plan.
And that things happen for a reason...
But seriously... this is all more than my little brain can figure out.
I've mentioned in prayer on more than one occasion that
"somebody's got some splainin' to do" when DECADES from now, God calls me home.

Thank you all for checking up/in on me.
I appreciate it more than words can ever convey.
My friends here at HER2 Support are one of the greatest blessings in my life.
And, I'm so glad you get a smile or a laugh out of my posts.
Cancer HATES to be laughed at... and anything that cancer hates... I LOVE!!

Please, keep praying for me...
or sending healing energy...
whatever it is you do...
it helps, I know it does.
My echo is on Friday. (not expecting a problem...but)
My brain MRI is Monday. (arghhh... stress x 10)
I hope they both are okay. (the understatement of the year!)
I'll be sure to let you know when I find out myself.

Sending love and light to all of you!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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