HER2 Support Group Forums - View Single Post

NEDenise · 02-09-2012, 06:33 AM

Amy,
I'm so sorry for your loss. Thank you so much for sharing your thoughts and feelings. I couldn't agree with you more. (big surprise)

I'm so sick of the awareness message. As Laurel pointed out...if there's a single person in this country who hasn't lost a loved one to BC, I'd like to meet them. We're aware already. Move on! Please find a cure.

I don't believe, as some seem to, that there is a conspiracy out there to avoid a cure, and keep the "cancer money mill" running. But I can't believe that the same nation that put a man on the moon in less than 10 years...can't find a cure before we all die from this. Maybe a candidate's lithmus test for election to the House, Senate, or White House should be realated to curing cancer, rather than to so many FAR less life-or-death concerns.

Laurel, as usual, I agree with you too. But, beyond the rich and famous, I think the rest of us need to be more active and vocal too. When Komen tried to un-fund mammograms through Planned Parenthood, the uproar was so great that within 2 days, they had to do a 180, and back away...apologizing as they went.

I wonder if all of us who are only 1 degree (or less) from losing a loved one to BC...if every single one of us...sent an email to our Senators, Representatives, and to the President.

If we each reminded our friends and family to do it too.
Maybe even all in the same week.
Could they really not get the message loud and clear?
Could the media really ignore such an outcry?

Am I crazy (or naive)...or is this a good idea? (okay...my self esteem is a little fragile...if I'm crazy, don't reply...)

Denise

02-09-2012, 06:33 AM	#11
NEDenise Senior Member Join Date: Aug 2011 Location: Philly Suburbs Posts: 1,709	Re: Two beloved voices silenced Amy, I'm so sorry for your loss. Thank you so much for sharing your thoughts and feelings. I couldn't agree with you more. (big surprise) I'm so sick of the awareness message. As Laurel pointed out...if there's a single person in this country who hasn't lost a loved one to BC, I'd like to meet them. We're aware already. Move on! Please find a cure. I don't believe, as some seem to, that there is a conspiracy out there to avoid a cure, and keep the "cancer money mill" running. But I can't believe that the same nation that put a man on the moon in less than 10 years...can't find a cure before we all die from this. Maybe a candidate's lithmus test for election to the House, Senate, or White House should be realated to curing cancer, rather than to so many FAR less life-or-death concerns. Laurel, as usual, I agree with you too. But, beyond the rich and famous, I think the rest of us need to be more active and vocal too. When Komen tried to un-fund mammograms through Planned Parenthood, the uproar was so great that within 2 days, they had to do a 180, and back away...apologizing as they went. I wonder if all of us who are only 1 degree (or less) from losing a loved one to BC...if every single one of us...sent an email to our Senators, Representatives, and to the President. If we each reminded our friends and family to do it too. Maybe even all in the same week. Could they really not get the message loud and clear? Could the media really ignore such an outcry? Am I crazy (or naive)...or is this a good idea? (okay...my self esteem is a little fragile...if I'm crazy, don't reply...) Denise __________________ 1/11-needle biopsy 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH! 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks 8/26/11 finished Taxol!!! 10/7/11 mastectomy/DIEP recon 11/11 radiation x28 1/12/12 1st CANCER-VERSARY! 1/12 Low EF/Herceptin "Holiday" :( 2/12 EF up - Back on Herceptin, heart meds 4/2/1212 surgery to repair separated incision from DIEP recon 6/8/12 Return to work :) 6/17/12 Fall, shatter wrist,surgery to repair/insert plate :( 7/10/12 last Herceptin 7/23/12 Brain Mets %$&#! 3cm and 1cm 8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb 8/23/12 Back to work 12/20/12 Injure back-3 weeks in wheel chair 1/12/13 2nd CANCER-VERSARY! 1/14/13 herniate disk in back - surgery to repair 1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm 5/3/13 Start Avastin to shrink necrosis 5/10/13 begin weaning steroids 6/18/13 Brain MRI - Avastin seems to be working! 6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear! 7/5/13 finally off steroids!! 7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin! 7/13/13 Symptoms return - back on steroids 7/26/13 Back on Avastin - try again! 8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :) 9/9/13 Brain MRI - fingers crossed “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert