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Old 12-17-2014, 09:53 AM   #9
BonnieR
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Join Date: Jun 2007
Posts: 2,210
Re: MET devastation & desperate for advice

Forher, I said before how I admire you, and all the partners, who have to step up and navigate a whole new world amid fear and uncertainty
It seems we do have to be our own advocates and do much research ourselves
Does your treatment facility have any really activist social workers or patient advocates who might do research for you and explore options? Sometimes you have to be the squeaky wheel
Have you called American Cancer Society? They might have suggestions
Just never give up hope. Always keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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