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Old 02-25-2013, 11:14 AM   #12
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: just need encouragement

Tammy,
All good advice shared so far. I'm so sorry you have so much to deal with right now. I am in awe of the fact that as poorly as you feel, you still get up and get breakfast for your family. That effort, knowing how utterly exhausted you are, speaks volumes about how much you love your kids!

I hope once they're on their way to school, you do as our friends here have said, and treat yourself kindly and gently. Rest is what you need...and I don't think the Lord is particular about how you get it. Seriously, I've come to see Ativan as one of his healing gifts. When steroids are coursing through my veins because my brain mets are acting up...Ativan is a way for me to survive it all.

And, I know when I'm exhausted from treatment...having to accept help, when like you, I've always been the giver...depression comes on fairly easily. If you haven't already, may I suggest that you talk with our onc about some kind of med to ward off the worst of those feelings. If you try it, and it doesn't work...you stop. But...if you don't try, you'll never know...it could have helped you feel better physically and emotionally too.

Thinking of you, and lifting you in prayer,
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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