HER2 Support Group Forums - View Single Post - Haven't been on this board for nearly 3 years

Jackie07 · 03-29-2013, 02:58 AM

KrisMum,

I'm so sorry about your daughter's recurrence and mets situation.

She needs some time to do her own grieving, to digest the shock, and to process her feelings besides taking care of her daily living/work/relationship ...

For a 28-year-old, that's a lot to take in/deal with.

There is a young survivor's group http://www.youngsurvival.org/ that she might feel more comfortable to join. (Did she ever check out the group during her first diagnosis/treatment?)

Having cancer at a younger age is indeed more dangerous as the cells are typically fast-growing. But there are survivors out there. She may also want to contact Imerman Angel's http://www.imermanangels.org/to get a matched one-on-one peer support.

Sending you both good vibes. Hard to imagine what you've been through. My (soon to be 90)Mother had undergone Non-Hodgkin's Lymphoma surgery/treatment when she's 75 (1998). She was very frantic when my breast cancer was diagnosed just five years after her cancer experience. Then I had the recurrence. And more surgery/treatment ... So I know how you are feeling.

Mother lives five thousand miles away, but my Oldest Brother (1990), 2nd Sister (2007) and one of my nieces (2010) all had come to take care of me after my surgeries. Mom's hard of hearing, so most of the messages were relayed by my sisters and brothers. Whenever I talked to her on the phone, I'd have to just listen because she couldn't hear well and she would repeat the same story again and again ... She did send me a long letter each time and my siblings and her always put together a big check to help out with the expenses. (Due to my brain injuries, everytime I had a surgery, I'd lose my job ...

Please keep us updated and let her know we are all praying for her.

03-29-2013, 02:58 AM	#14
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Haven't been on this board for nearly 3 years KrisMum, I'm so sorry about your daughter's recurrence and mets situation. She needs some time to do her own grieving, to digest the shock, and to process her feelings besides taking care of her daily living/work/relationship ... For a 28-year-old, that's a lot to take in/deal with. There is a young survivor's group http://www.youngsurvival.org/ that she might feel more comfortable to join. (Did she ever check out the group during her first diagnosis/treatment?) Having cancer at a younger age is indeed more dangerous as the cells are typically fast-growing. But there are survivors out there. She may also want to contact Imerman Angel's http://www.imermanangels.org/to get a matched one-on-one peer support. Sending you both good vibes. Hard to imagine what you've been through. My (soon to be 90)Mother had undergone Non-Hodgkin's Lymphoma surgery/treatment when she's 75 (1998). She was very frantic when my breast cancer was diagnosed just five years after her cancer experience. Then I had the recurrence. And more surgery/treatment ... So I know how you are feeling. Mother lives five thousand miles away, but my Oldest Brother (1990), 2nd Sister (2007) and one of my nieces (2010) all had come to take care of me after my surgeries. Mom's hard of hearing, so most of the messages were relayed by my sisters and brothers. Whenever I talked to her on the phone, I'd have to just listen because she couldn't hear well and she would repeat the same story again and again ... She did send me a long letter each time and my siblings and her always put together a big check to help out with the expenses. (Due to my brain injuries, everytime I had a surgery, I'd lose my job ... Please keep us updated and let her know we are all praying for her. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 03-29-2013 at 03:21 AM..