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Old 08-19-2014, 07:38 PM   #28
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: Went for mammo and cancer has returned...

My doctor is wonderful, And I am so glad I switched oncologists. I have this board to thank for even giving me her name because I wouldn't have even known to go to her. My previous qONC didn't hear me but she does. I saw her the first time in February and this past Thursday was supposed to be a mammogram and see ya in idk 6 months or a year. I don't even know the protocol for it. I am still in shock that it's happening. I had them take my stupid port out on 3/14/14 because I wanted to believe I was done. Just the thought of putting my port in again sounds YUCKY......on the bright side she felt it, and my other ONC never really felt me. Just asked what I was doing for fun and nurse Ratchet acted like I was annoying with all my questions.

Dr. Miller told me and promised me she will always listen to me and for me that was huge. She pulled all kinds of strings to do an ultrasound guided biopsy on the same day last Thursday she found the lump. She didn't want me to wait, drive 3 hours round trip and truly cares about me. Then to be a researcher, knows about trials, explains things before I even ask, is honest, and I know she cares, I wasn't a number, she held my hand, and hugged me and through in she is extremely intelligent, and I thank God this board told me about her because she could very well save my life.

I go Thursday for results and with her I feel I will never need a 2nd opinion....
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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