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Re: Stage 4 after 2 yrs being stage 2
Kathy, sorry to hear you have joined the metster club. The first shock of rediagnosis is terrible, but we are a resilient bunch and hope to continue living as best we can. There is hope in the ever-increasing array of treatments available, especially those targeted to Her2 and ER. I am sure you will get many responses to your post, but remember we are all different and respond to treatments in different ways.
It is very common to start with Herceptin, Perjeta and "something else" to knock the lesions down as quickly as possible. Then with luck, the Herceptin can give people long periods of stable disease. Listen to what your oncologist suggests, but always be open to getting a second opinion. I hope you can get a treatment plan established quickly and with good results. Best wishes..... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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