HER2 Support Group Forums - View Single Post

fauxgypsy · 11-21-2015, 03:28 PM

I should know better than to schedule a scan on a Friday, and the Friday before Thanksgiving. Waiting is awful. I have been having pain in my upper arm and shoulder for quite a while. My oncologist tried to say it was Fibromyalgia and was planning on sending me to a pain manage specialist (since I can't take most pain medicines, I don't know if that would have helped). He did not do any blood work and kind of blew me off. I reminded him that there was a spot on my humerus that that they have watched for some time. So he sent me for a bone scan. I had the bone scan on Friday and they let me glance at it. My right shoulder lit up. A lot. I know that there are other things that can cause that but I am worried. They did close ups of my skull too but said that they did that anytime they did a bone scan for a person who had previously had cancer. I did not see those. I may be able to see the radiologist's report tonight or Sunday night online. I will call the oncologist Monday. Just worried. I have been NED since 2007, but there was a real screw up and I may have been stage 4 or maybe stage 2. We just moved to another state and I love my position there. I am teaching at a very small college. Things are going well. I hope...well you all know what I hope. : (

11-21-2015, 03:28 PM	#1
fauxgypsy Senior Member Join Date: Apr 2007 Location: Mississippi Posts: 600	Bone scan I should know better than to schedule a scan on a Friday, and the Friday before Thanksgiving. Waiting is awful. I have been having pain in my upper arm and shoulder for quite a while. My oncologist tried to say it was Fibromyalgia and was planning on sending me to a pain manage specialist (since I can't take most pain medicines, I don't know if that would have helped). He did not do any blood work and kind of blew me off. I reminded him that there was a spot on my humerus that that they have watched for some time. So he sent me for a bone scan. I had the bone scan on Friday and they let me glance at it. My right shoulder lit up. A lot. I know that there are other things that can cause that but I am worried. They did close ups of my skull too but said that they did that anytime they did a bone scan for a person who had previously had cancer. I did not see those. I may be able to see the radiologist's report tonight or Sunday night online. I will call the oncologist Monday. Just worried. I have been NED since 2007, but there was a real screw up and I may have been stage 4 or maybe stage 2. We just moved to another state and I love my position there. I am teaching at a very small college. Things are going well. I hope...well you all know what I hope. : ( __________________ In the world of destiny, there are no statistics. Jan. 26- mammogram and ultrasound- suspicious lump Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes ER+/PR+, her2 +++, nuclear grade 3 of 3 February 20-PET scan showed something on liver. No biopsy. March- Started carboplatin, herceptin, taxol on a four week cycle May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy June 21- new onc, very concerned that there had been no biopsy, June 18th-CAT scan, bone scan-negative August 7th - Brain MRI-negative August 9th- mastectomy, all pathology negative January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07 July 2008-Finished Herceptin!