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LeahM · 05-26-2015, 05:35 PM

Thanks Ladies,

Every time I have asked med onc about PET scan he says my labs are good so why go looking for trouble? I respect the man but sometimes feel he has an old school "let ME worry about it"" attitude. I have followed his advise for the past (almost) two years since ending Herceptin.

Yes, I did have a very bad cold this past winter plus took a hard hit to the ground while sledding over an ice ramp (I really don't recommend anyone ever do that) but both were months ago. Months and months ago.

But....I swear that now, after BMX 3 years ago and reconstruction 2 years ago, I am getting sensation back in my upper torso. Pins and needles tingling. Itchy itchy itchy foobies.

One of my favorite infusion nurses texted today to remind me that MD's have to say "we can't rule out" because of our highly litigious society and I understand that but..still....it doesn't help calm my nerves.

I guess now I wait. Wait for rad onc to come back from vacation (I am not scheduled to see her until March 2016) and wait to see if pain goes away or gets worse. What else can I do?

But here is the question I have for rad onc when she is back...If I didn't have "History" what would she think that black spot on my bone scan and xray is? What would be her first thought?

And I'm sorry I've been so absent lately. I have been here (I can't drag myself away for long) but quiet. I know exactly what is going on with our posting members, new and old, and continue to pray daily for all of us.

Leah

05-26-2015, 05:35 PM	#7
LeahM Senior Member Join Date: May 2012 Location: Bethlehem PA Posts: 395	Re: "Healed" rib fracture or...?? Thanks Ladies, Every time I have asked med onc about PET scan he says my labs are good so why go looking for trouble? I respect the man but sometimes feel he has an old school "let ME worry about it"" attitude. I have followed his advise for the past (almost) two years since ending Herceptin. Yes, I did have a very bad cold this past winter plus took a hard hit to the ground while sledding over an ice ramp (I really don't recommend anyone ever do that) but both were months ago. Months and months ago. But....I swear that now, after BMX 3 years ago and reconstruction 2 years ago, I am getting sensation back in my upper torso. Pins and needles tingling. Itchy itchy itchy foobies. One of my favorite infusion nurses texted today to remind me that MD's have to say "we can't rule out" because of our highly litigious society and I understand that but..still....it doesn't help calm my nerves. I guess now I wait. Wait for rad onc to come back from vacation (I am not scheduled to see her until March 2016) and wait to see if pain goes away or gets worse. What else can I do? But here is the question I have for rad onc when she is back...If I didn't have "History" what would she think that black spot on my bone scan and xray is? What would be her first thought? And I'm sorry I've been so absent lately. I have been here (I can't drag myself away for long) but quiet. I know exactly what is going on with our posting members, new and old, and continue to pray daily for all of us. Leah __________________ 39 year old wife, mother of one and nurse. April 20, 2012: Dx Invasive Ductal Carcinoma April 25, 2012: ER+(5%), PR-, HER2+++ May 10, 2012: BRCA 1,2 Negative May 23, 2012: MUGA Scan EF 70% May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed June 5, 2012: Drains OUT! Ahhhh.. June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early" July 10, 2012: Started 6 rounds of TCH with weekly H Sept 5, 2012: MUGA 65% Sept 20, 2012: CAT scan of brain clear! Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013. Nov 19, 2012: Port out! Dec 5, 2012: Started radiation Dec. 10, 2012: MUGA 65% Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER! Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013. Jan 29, 2013: Begin 5 years of Tamoxifen. Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months. Mar 6, 2013: EF 60% May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good! June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms... June 11, 2013: EF 60% June 25, 2013: Last Herceptin. wow... Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures. Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on. Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this. Feb 2014: Tumor markers within normal limits. May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts. Oct 2014: Tumor markers within normal limits. May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt? Nov 2015: Tumor markers WNL. Follow up bone scan clear. Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know. June 2016: Tumor markers WNL. Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia. Nov 2016 Brain MRI clear. Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know. www.onmywaytosurvivorhood.blogspot.com www.thechemobag.com www.facebook.com/thechemobag