HER2 Support Group Forums - View Single Post - Help, cancer has spread from bones to my lungs

Pamelamary · 06-03-2014, 01:10 AM

Dear Kristin,
My own experience is not directly relevant, but reading some of the other posts seems to make it clear that lung mets are no more predictable than other kinds. Your doctor seems to be promoting panic, and I agree with the others about a second opinion. Good luck with the Estradiol and remember there are other things to try as well.
Warm wishes....Pam

06-03-2014, 01:10 AM	#13
Pamelamary Senior Member Join Date: Apr 2012 Location: Melbourne, Australia Posts: 494	Re: Help, cancer has spread from bones to my lungs Dear Kristin, My own experience is not directly relevant, but reading some of the other posts seems to make it clear that lung mets are no more predictable than other kinds. Your doctor seems to be promoting panic, and I agree with the others about a second opinion. Good luck with the Estradiol and remember there are other things to try as well. Warm wishes....Pam __________________ Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+, C-erbB-2 status 3+. Clear margins, no nodal involvement. Radiotherapy, i year Tamoxifen, 4 years Arimidex. Rediagnosed 2012: Multiple bone metastases. 3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo. 5/12:Unexpected development of numerous bilateral liver mets. Came off trial. Started Docetaxol/ Herceptin + Zometa. 8/12:Bones stable +major regression in liver (!) 9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers! Changed to Denosumab. 11/12: Scan shows stable - yay! 11/13: Still stable :-) !!! 1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly. 2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.