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Sheila · 04-12-2011, 11:41 AM

Tricia
As you know I have been on Halaven since December 2010. I was the first in the midwest to get it. I ended up with feeling tired, slight nausea, or lack of hunger. I had them give me Zofran and Compazine IV at first, and that took care of it. I now take care of it by taking oral Zofran and hour before, and up until this latest event this past week, drove myself for treatments (75 miles each way.) I usually feel a little sluggish for a day or 2, nothing unbearable, I did the whole week at San Antonio after my first treatment, I just know when I'm tired I rest. I have never had Abraxane, but my friend seemed to have worse side effects with that. If you go on Halaven (Eribulen), just be cautious with your white counts. I am now on Neupogen 5 days week one, & Neulasta day 1, then day 7 then a week off cycle. It melted away all internal nodes, and took care of skin mets on my neck that grew even while on TDM-1. Even after my life threatening experience last week, I was able to get the Halaven today....I think you will do fine Tricia....it has proven to work miracles on many patients already. By the way, I did lose my hair, but it is growing back while on it, and its only been 4 months. Hoping it is your miracle Tricia....by the way, I am also on Herceptin with it.
Love to you
Sheila

04-12-2011, 11:41 AM	#2
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Re: What to do now??!!TriciaK Tricia As you know I have been on Halaven since December 2010. I was the first in the midwest to get it. I ended up with feeling tired, slight nausea, or lack of hunger. I had them give me Zofran and Compazine IV at first, and that took care of it. I now take care of it by taking oral Zofran and hour before, and up until this latest event this past week, drove myself for treatments (75 miles each way.) I usually feel a little sluggish for a day or 2, nothing unbearable, I did the whole week at San Antonio after my first treatment, I just know when I'm tired I rest. I have never had Abraxane, but my friend seemed to have worse side effects with that. If you go on Halaven (Eribulen), just be cautious with your white counts. I am now on Neupogen 5 days week one, & Neulasta day 1, then day 7 then a week off cycle. It melted away all internal nodes, and took care of skin mets on my neck that grew even while on TDM-1. Even after my life threatening experience last week, I was able to get the Halaven today....I think you will do fine Tricia....it has proven to work miracles on many patients already. By the way, I did lose my hair, but it is growing back while on it, and its only been 4 months. Hoping it is your miracle Tricia....by the way, I am also on Herceptin with it. Love to you Sheila __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin