HER2 Support Group Forums - View Single Post

bejuce · 02-08-2012, 02:51 PM

Thanks for posting this. I followed Susan's journey on her blog almost daily and when I saw her last post and nothing for 2 weeks, I was fearing the worst. I found out last night and was quickly into a mind funk. It was hard to get up this morning. Susan was such an inspiration and a brilliant NASA scientist as well. Why does this have to happen to people??? She left 2 young boys, a husband, parents, in-laws, and many friends who loved her.

I went to my kickboxing class an hour ago and with every punch and kick I thought of this stupid disease and how much it devastates people's lives. Where is all the research money going to??? You'd think that a cure would be found by now, or at least a controlling mechanism that enables people to live with the disease until their kids are grown. There was so much progress made in AIDS, and yes, so much progress made in HER-2+ BC, but for inflammatory cases, it's still the luck of the draw. So very sad.

02-08-2012, 02:51 PM	#7
bejuce Senior Member Join Date: May 2009 Posts: 510	Re: Two beloved voices silenced Thanks for posting this. I followed Susan's journey on her blog almost daily and when I saw her last post and nothing for 2 weeks, I was fearing the worst. I found out last night and was quickly into a mind funk. It was hard to get up this morning. Susan was such an inspiration and a brilliant NASA scientist as well. Why does this have to happen to people??? She left 2 young boys, a husband, parents, in-laws, and many friends who loved her. I went to my kickboxing class an hour ago and with every punch and kick I thought of this stupid disease and how much it devastates people's lives. Where is all the research money going to??? You'd think that a cure would be found by now, or at least a controlling mechanism that enables people to live with the disease until their kids are grown. There was so much progress made in AIDS, and yes, so much progress made in HER-2+ BC, but for inflammatory cases, it's still the luck of the draw. So very sad. __________________ ER+ (30%)/PR-/HER-2+, stage 3 Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding. March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin 08/12/09 - bye bye boobies (bilateral mastectomy) 08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best! September-October 09: rads with daily Xeloda 02/25/10 - Cholecystectomy 05/27/10 - Bone scan clear 06/14/10 - CT scan clear, ovarian cyst found 07/27/10 - Done with Herceptin! 02/15/11 - MVA-BN HER-2 vaccine trial 03/15/11 - First CA 15-3: 12.7 and normal, yay! 10/01/11 - Bone scan and CT scan clear, fatty liver found now on Tamoxifen and Aspirin