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Old 03-29-2007, 08:56 PM   #14
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Hi, I'm 2B node neg in No Va. Insurance company squawked a little before FDA approval of Herceptin. After contacting state insurance board, ole blue consented to treatment before FDA approval. Onc had to write note about medical necessity. We had to write numerous notes and email stating our position.

We don't know your whole story-path. If your cancer is grade 3 or highly IHC+ or Fish + or ER/Pr- , or size wise pushing stage 2, I would want to do Herceptin. Oncotype test could be done at some expense to prove your point.

I do see some sort of a regional thing with who uses TCH, and AC + TH. Stage 1, I might gravitate to TCH. C being carboplatin not cytoxin. I did AC + TH.

Plain wrong about Herceptin only for mets.

Do get a second opinion. I do have a nuclear bomb approach to cancer which many people may not choose to follow. You're at the hardest phase right now. Sort it out and fight for what you want.

By being on board here, I can tell you are going to find the info and get done what needs be.

Good luck, Bev
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